RARE DISEASE PRACTICE

RARE DISEASE PRACTICE

Patient Advocacy

Rare diseases often share the stress of a health care system that can appear unkind, sometimes, inadvertently so. We help increase the involvement, knowledge and trust of patients by working with all stakeholders.

Patient Registries

Electronic Health Records are essential in rare disease research to capture big data trends among orphan and ultra-orphan patient populations. Data privacy and security must also meet the highest standards (GDPR).  Let us build your patient registry.

Commercialization Launch Plans

The Brand SWOT is developed. The Target Product Profile is secured. But the forecast is woefully inadequate. This could be the compounded result of erroneous assumptions, unexpected market events, or miscalculated demand. We can pressure test your launch plans so that your commercialization results go as forecast.